The Children’s Ward in HCMC

It is always difficult to see children with cancer and in HCMC this is very much the case.  The same overcrowded conditions exist in this part of the hospital.  Some families prefer to camp out in the halls or the stairwells because if you can believe it, they actually have a little more room and privacy there.

Children's Ward

Children's Ward

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Child in Hallway

Child and Mother in Hall

Family in stairwell

 

 

 

 

 

 

 

 

 

There is a playground out in the main courtyard area of the hospital and whenever the children were up to it, they were out there, smiling, laughing and playing, just being regular kids.  They have a metal swing on the playground, and every time you went outside you heard the constant creaking of that swing, all day, every day.  Because this is the only place in the hospital where a mother can sit and rock her child to comfort them, and it was always filled and it was always creaking.  It is one of my most vivid memories of the HCMC oncology hospital.

Playground

Mother and Child on Swing

 

 

 

 

 

 

 

 

 

 

 

 

 

Posted in Cancer, Carolyn Taylor, Children's cancer, Misc., overcrowded, vietnam | Tagged , , , , , | Leave a comment

Ho Chi Minh City Oncology Hospital

Take Can Tho multiply it by 10 add a children’s ward and you get the Ho Chi Minh City Oncology Hospital.  It is a sprawling complex of wards, radiation rooms, chemo units and surgical suites.  With 1,100 beds, their inpatient population ranges between 2,000 – 2,500 patients.   I don’t know how many outpatients they treat on a daily basis, but it is simply overwhelming.  Here the word patient takes on a whole new meaning.  People wait to see a doctor, they  wait to have treatment, they wait to use the bathroom.  It’s probably best to just show you than to try to tell you.

courtyard and main building

chemo "waiting room" or stairwell

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Admitting

Waiting again

All 4 cancer hospitals in Vietnam are also teaching hospitals and our visit to the Ho Chi Minh City Oncology Hospital coincided with the Annual Vietnam Meeting on Cancer Control.   We were invited to attend the welcome dinner and all of the seminars and presentations that were scheduled over 3 days at the hospital.  We also could go anywhere we wanted to in the hospital itself.  Unfortunately because of the seminar, the staff was more overwhelmed than usual, so it was difficult to get anyone to spend time with us acting as an interpreter.  We were really fortunate that a lovely man Hoi came up to us and introduced himself in English.  His father was a patient at the hospital and he brought us to meet him.

Hoi and his parents

His father Phu had worked for the US Army during the Vietnam War.  He is now suffering from bone cancer.  Hoi and his mother stay in the hospital with him to care for him while he receives chemotherapy treatments.  His parents share the hospital bed and Hoi sleeps on the floor underneath them.  They live 450k away from HCMC in Nha Trang.  Hoi, his sister and his brother pay for his father’s transportation, hospital fees, food, and medicine and Hoi must take time off work for 2 weeks at a time to help his parents while they are in HCMC.  Hoi then introduced us to his father’s room mates and guided us around the hospital to other wards and interpreted for us.  In Nha Trang, his home town, he is a tour guide and is fluent in French, English and Vietnamese.  He is a very educated man, but in Vietnam, awareness about cancer is sorely lacking and Hoi was concerned that being by so close to so many people with cancer that he might actually catch cancer.  We assured him that was not the case.  We have communicated via email and his father was doing very well the last I heard.  I hope he still is.

Here are some photos that document what conditions are like in the Ho Chi Minh City Oncology Hospital.  I think they pretty much speak for themselves.  I just want to say that everyone there treated us with great kindness, they were open and warm and generous to us.  I can’t imagine how difficult it must be to be a patient in these incredibly overcrowded conditions.

Regular patient room

A small section of the women’s cervical ward

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Family caregivers living in hallway

Patient

Regular patient room

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Regular patient room

Posted in Cancer, Ho Chi Minh City Oncology Hospital, Misc. | Tagged , , , , | 8 Comments

My final BA flight

Me working in yet another hotel room!

I can’t believe that a year has gone by since I took my first trip to Geneva to start this project rolling.  It has literally flown by (haha, pun intended).  Honestly though, as my flight was taking off from NY last Wednesday night I was deeply emotional.  What a year it has been for me.  I have flown over 95,000 miles and visited 16 countries. I have had the great privilege to meet remarkable people who have shared their stories of struggle, triumph, heartbreak and joy.  They have generously allowed me into their lives and they will be forever in my heart.  Waiting for the plane to take off, I was reliving the year like a film strip or a sort of chopped up super 8 movie running through my mind and I watched the places I had visited and saw all the people that I had met, and I had to pinch myself because this wasn’t a movie, or a dream, it was my life.  All these bits of memories flooding in, sights, smells, sounds, tastes, a veritable assault on my memory senses, and I loved it, I just wanted to soak in it until I was completely pickled and pruney.  How lucky I have been to come to this place in my life.  I try not to take any of it for granted, every day I am thankful for all that I have.  I just hope that somehow with this project I can find a way to help everyone that has helped me.  It would be a dream come true, and as I most certainly know, dreams can come true.

 

Posted in Cancer, cancer support group, Carolyn Taylor, Misc. | Tagged , , | 6 Comments

Upcoming Lecture/slide show with the Connecticut Challenge

I was really lucky to be introduced to the wonderful people at The Connecticut Challenge.   They are a fantastic support group that work in Connecticut to help empower cancer survivors to live healthier, happier and longer lives.  Their website provides a wealth of  resources for those suffering from or surviving cancer.  I am very honored that they are hosting a small exhibition of some of the photos I have taken over this past year at the Fairfield Public Library in Fairfield, CT.  There will be an opening reception where I will be giving a little lecture and slide show on March 24, 2011 at 7:00pm.  Here is the link to sign up for the event  Fairfield Public Library, registration is free, but you must sign up in order to attend.  I hope to see you there!!

 

Posted in Misc. | Tagged , , , , , | 3 Comments

Patient’s in Can Tho

Ngu Hue Chau

Ngu Hue Chau was diagnosed in 2003 with breast cancer, she was 35 years old.  She was petrified.  She is a single woman, supporting herself working as a seamstress.  She underwent a mastectomy and chemotherapy.  In late 2009 her cancer returned.  By the time it was found it had metastasized to her lungs and brain.  She is now being treated at the hospital with chemotherapy.  She has some financial and emotional help from her brother and sister.  She continues working when she can.  She tries to be very positive to keep the disease from spreading.  She says she is very happy, she believes in life.  Chau has a beautiful spirit about her.  I am sure that her attitude will help her greatly in her fight.

Cao Thi Li

In 1987 Cao Thi Lien suffered from a variety of skin diseases, she had to take many drugs that were very toxic to heal her skin.  In 2004 she was diagnosed with breast cancer, in 2008 she was diagnosed with skin cancer.  In 2010 she was diagnosed with carcinoma of the skin and four days before I met her she had major surgery to remove the cancer and to try to repair the multiple ulcers that would not heal on her body.  Her little finger and part of her hand were removed.  Her omentum and the skin on her stomach were removed and used to graft onto her heel.  The doctors performed incredible surgery on her. She is a single woman supporting herself and her mother.  She was in tears worried about her future, will cancer return again?  If it does, how will she support her mother and pay for her treatment?

Nguyen Thi Huyen

 

 

 

 

 

 

 

 

 

 

 

 

When I first met Nguyen Thi Huyen she was awaiting the results of a liver biopsy to see if she had cancer.  Two days later the married mother of a 24 year old son and a 16 year old daughter found out her biopsy was negative.  We all had a good reason to smile.

Nguyen Thi  Mun is 43 years old, married with one child, she cheerfully showed me the site of her surgery.  This was a Tuesday, she had her surgery the previous Friday.

Nguyen Thi Mun

Luu Van Hue is 41 years old.  He has been a paraplegic since age 9.  He sells lottery tickets on the street to make a little money.  In September 2010 he was diagnosed with Acute Myelogenous Leukemia, he has a very poor prognosis.  His mother and younger brother are helping to care for him.

Luu Van Hue

Mother Luu Van Hue

Posted in Can Tho Oncology Hospital, Cancer, Dr. Thang, Misc., vietnam | Tagged , , , , , , , , , | 2 Comments

Can Tho Survivor stories

On our first morning at the hopsital, Dr. Thang introduced us to some wonderful women cancer survivors. I was honored to hear their stories and share mine with them.

Le Thi Hoang

Le Thi Hoang is 82 years old and a 10 year survivor of breast cancer.  She had a mastectomy, chemotherapy and hormone replacement.  She is a single independent woman, the cost of her treatments took most of her savings, but with financial help from her brother she was able to pay for everything.  She was afraid that cancer was just a death sentence, she was terrified of the whole process, but she endured it all and feels very well now. Her advice is to go early for a diagnosis and treatment and use modern medicine, not local healers.

Dang Thi Thao

Dang Thi Thao was diagnosed with cervical cancer at age 68 in 2003.  She had a hysterectomy for her treatment.  Her children helped her both financially and physically.  She says one should have faith in your doctor.

Ton Viet Dung

Ton Viet Dung found a lump in her breast in 2009 at 52 years old.  It was stage 2 breast cancer.  She had a radical mastectomy and chemotherapy.  She suffered horrible side effects, it was very hard for her.  During our discussion, she broke down in tears.  The past few years have been so difficult for her, the cancer, then her husband suddenly passed away in February 2010.  She is now living with her son and trying her best to maintain a positive outlook on life.  I just kept hugging her and wishing that I could do more for her.

Ngo Thi Vui

Ngo Thi Vui was diagnosed with breast cancer at age 34 in 2001.  She had a mastectomy and 6 rounds of chemo.  She was diagnosed in her home town, but traveled to Can Tho for her surgery and treatment.  She told me that having cancer changed her life.  It gave her the strength to pursue her dream.  She had worked as a tailor and her husband is a farmer. But after surviving cancer she took a leap and opened her own small business.  A little shop that sells gum, water, soda and papers.  She is very happy and urges others to have treatment as soon as possible, you can survive, cancer does not have to mean death.

Huynh Ngoc Thanh Chau

In 2002 Huynh Ngoc Thanh Chau was working as a high school English teacher.  She was not feeling quite herself, she was anxious and extremely tired all the time.  She came to the hospital, she was petrified.  She was diagnosed with breast cancer.  She was not married, felt terribly alone and just wanted to die. Dr. Luar and Dr. Thang told her she must be brave and strong, you will survive this and live a long life.  She believed completely in her doctors.  She had a mastectomy and chemotherapy.  She was very sick, but she has survived and today loves life.

I also had the absolute joy to be introduced by Dr. Thang to Mr. Phan Van Kim.  He is a 94 year old survivor of gastric cancer.  He was diagnosed by Dr. Thang in 2002 at age 83.  Mr. Phan was experiencing pain in his abdomen and nausea when eating.  He went to the hospital but thought that he was too old for surgery, that he would just die, but Dr. Thang convinced him that he must have the operation and that he would continue to live a long and fruitful life.  Day by day after the surgery he felt better and better.  He spent a total of 20 days in the hospital. He had great support from his family to get well.  Today he is so thankful for Dr. Thang’s advice and care, and he is happy to continue living a very long and healthy life.  His advice to others is to go to the doctor and hospital early, trust in your doctor and keep a positive attitude.

Phan Van Kim

Posted in Can Tho Oncology Hospital, Cancer, Dr. Thang, vietnam | 1 Comment

More Can Tho

We only spent 2 days in Can Tho, but by the time we left we felt as though we too were now a part of the family here.  In that short time we were given complete access to the hospital, staff and patients.  We had a team of 3 young doctors at our sides constantly.  Dr. Trung, Dr. Van and Dr. Kim were our interpreters, guides, teachers, motor bikes chauffeurs, and chop stick instructors.  They are only 24 years old, but wise beyond their years.  They are Dr. Thang’s young protoges, he treats them (and the patients) as if they were his own children.  He is their teacher, mentor, guide and friend.  It was great to get a glimpse into the training of these young doctors.  I am sure they will become wonderful physicians and will have a great impact on the face of cancer in Vietnam.

Dr. Van, Dr. Kim and Dr. Trung

One evening one of the surgeons, Dr. Luar invited us, our “guides” and some of the other staff to the home of one of his patients Mrs. Tran Thi Su for a family dinner.  Mrs Tran is a survivor of breast cancer.  She was diagnosed on September 11, 2001.  She was terrified, afraid to treat it, but she believed in Dr. Luar and underwent a mastectomy, 6 rounds of chemo and hormone replacement.  She is quite well today.  Her advice is to get treatment early, trust your doctors and listen to the advice of other patients.  Don’t be afraid of death, you can be cured and survive.  Having dinner in her home was a great glimpse into the doctor-patient relationships that are established at the hospital in Can Tho.  Dr. Luar was truly a part of the Tran family.  This is the norm in Can Tho, they treat their patients as if they were their own flesh and blood.  It is a beautiful thing to see and an experience I will always treasure.

Tran Thi Su

Dr. Luar

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Can Tho, Vietnam

From the street looking through the nondescript gates, one would never know that the Can Tho Oncology Hospital is a very special place.  The building looks like all the others on the street except for the constant flow of people around the entrance.  Once inside the gates, indoors and out merge into one space buzzing with activity.  Doctor’s and nurses rushing about trying to accommodate the throngs of patients waiting to be cared for.  This small oncology hospital serves about 20 million people in the Mekong delta region.  There are 120 beds, one cobalt radiation machine (donated by India), one ultrasound machine (again donated), one microscope for pathology (yep, donated) and at any given time 200-300 patients in house.  This means at times there are 2-3 patients sharing 1 bed. Make shift beds of lawn furniture are set up outside to accommodate the overflow.  Not to mention the 300 or so patients that are seen daily on an out patient basis by the 45 doctors and nurses on staff. It is this incredibly dedicated, talented and compassionate staff that make the Can Tho Oncology Hospital such a truly inspiring place.

Waiting area

The hospital is open 7 days a week, from 7:00am to 5:00pm to see patients, but it is humming around the clock to try to handle their ever increasing patient load.  The radio therapy unit treats over 50 patients a day, one of the doctors Dr. Trung told us that by 9:45am he had already seen 48 patients.  You would think that it would be total chaos, but it isn’t. The patients define the word patience, they are calm, polite, helpful to each other and grateful for the quality care that they are receiving.  The doctors and staff are immensely capable and caring.  Their level of commitment and dedication to their patients and the hospital are a direct reflection of Dr. Thang Quyet Huynh, the director of the hospital.  Dr. Thang is a rare and special person.  He is a pioneer in the field of oncology in Vietnam.  He is both and MD and a PhD.  He and 4 other doctors started the oncology department in Can Tho in 1999 as part of the general hospital.  In 2007 a new general hospital was built and the oncology division remained on that site to become it’s own facility.  It is also a teaching hospital, training new doctors.  Dr. Thang has established an English language club so the doctors can have better access to new techniques, procedures and technologies to give the highest quality care they can to their patients and in order to publish their own articles.  The hospital evaluates and implements new procedures for the country.  They are working on a cancer prevention campaign to educate the population and other doctor’s.  All of this on a shoe string budget, with very limited equipment and supplies, in cramped, overcrowded conditions.

Patient Overflow

Pathology

To me what makes this hospital so special is that under these  taxing conditions, the patients are receiving wonderful care in every aspect from the family of doctors led by Dr. Thang.  And they truly are like a family, they are kind and respectful to each other and the patients, they are nurturing yet stern with the young doctors and students.  There is a great feeling of love and compassion here that is unique and palpable.  Even though in Vietnam 70-80% of cancer patients are diagnosed in late stages, 3 or 4, everyone at the hospital remains positive, they look to the bright spots, the successes, and provide quality care and dignity for each patient.  It is no wonder that Dr. Thang was just named president of the Vietnam Cancer Society.

I am in awe and completely humbled by our experience in Can Tho and I am deeply grateful to Dr. Thang and his staff for their generosity, kindness and openness.  My next post will will go into more details about our very full 2 days spent there.

Dr. Thang

Emergency Room

Ultrasound Room

Radiology

Patient Ward

The Lab

Post Op 1

Post Op 1

Patient Room

Post Op 2

Posted in Breast Cancer, Can Tho Oncology Hospital, Cancer, Carolyn Taylor, Dr. Thang, Misc., vietnam | 1 Comment

A few more photos from the Hanoi Breast Cancer Club meeting

Patients and survivors

Dr Linh

Mr and Mrs Pham Quang M, she is a breast cancer survivor

more of the group

Breast cancer survivor

Me and a new friend

A lovely singing performance

Posted in Misc. | 2 Comments

Hanoi, Vietnam

It is 9:00 am on very gray Saturday morning in Hanoi.  Chris and I are trying to locate the room where we are meeting Dr. Dieu Linh Nguyen and Mrs. Huong Phung Thi and their Breast Cancer Club.  Smiling faces gently point us up the grand old staircase in the K cancer hospital to the second floor auditorium.  I am thinking there are quite a lot of people here for a Saturday morning.

Hanoi National Cancer-K-Hospital

Inside the NCH Hanoi

Dr. Linh and Mrs Huong are two inspirational women. Mrs. Huong was diagnosed with stage 2 breast cancer in 2007.  She had a mastectomy, chemotherapy and radiation.  Dr Linh was her oncologist and thankfully she has made a complete and total recovery.  Dr. Linh had won a grant to study at the University of Wisconsin Cancer Center.  She was impressed by the survivor support groups she saw there and felt there was a real need for this in Vietnam.  Upon her return to Hanoi she recruited Mrs. Huong to start a support group.  They have no assistance from the government, they are completely self funded.  The 2 hour meeting/lecture that we sat in on had about 100 men and women in attendance.  They were cancer patients, survivors and care givers there.  Dr. Linh and Mrs. Huong hold these meetings the last Saturday of every month.  They are open to anyone who wishes to attend.  Each month they give a lecture and focus on different topics including general health, cancer awareness and prevention.  They also provide an open forum for patients and care givers as well as the general public to ask questions and share their feelings and thoughts about their own situations.  Every 3 months they take a field trip to the ward to visit with patients.  They organize festivals and performances for children with cancer, especially those from the rural areas who have never had the opportunity to see these things.  They also try to raise money for cancer patients with lesser means.   What these two women are doing is simply amazing.  They are providing the sole support service for all cancer patients in the Hanoi area, on their own, in their spare time (which isn’t much as Dr. Linh is a surgical oncologist, Mrs. Huong works as a deputy manager for the Vietnam Environment Protection Fund),  and out of their own pockets. We were really in awe of what they have accomplished.  Their enthusiasm, commitment and dedication are truly inspirational.

Mrs. Huong and Dr. Linh

As we traveled around Vietnam over the next few weeks we realized that they would be the ONLY cancer support group that we would see in the entire country.  It seems to be a very new concept here, but I really feel that support groups would be an invaluable resource for both the patients and the incredibly overtaxed health care system here.  I will try to do my best to help connect Dr. Linh and Mrs. Huong  with other support groups and associations that I have met and try to draw some attention to their cause so they themselves can have some support in the work they are doing.

Posted in Cancer, cancer support group, hanoi, Misc., vietnam | 1 Comment
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    I am a photographer living in Westchester county, NY. I have been shooting commercial advertising for the past 20 years. I recently received a small business grant from British Airways. I won 10 business class flights to any 4 destinations that BA flies. It was a contest based on a series of essays that I wrote explaining how face to face travel could change my business and help it take a more photo journalistic path. My essays talked about the fact that I am a survivor of ovarian and endometrial cancers, and that since I have been sick, I have been looking for an opportunity to travel around the world documenting photographically how women with cancer are intrinsically connected. I would like to show how our struggles, hopes, joys, and concerns have no borders. That we share a common bond, regardless of where we live around the globe. This blog is hopefully going to document this journey over the next year.


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